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Iraqi patient with rare genetic disorder gets new lease of life in India

Doctors at Fortis Memorial Research Institute, Gurgaon gave a new lease of life to a 27-year-old Iraqi woman recently. The patient was suffering from a rare genetic condition in which several vital body organs exist in duplicate. A team of four doctors led by Dr Sanjay Gogoi, Director, Urology and Renal transplant, carried out the rare and extremely complicated seven-hour surgical procedure on 18 April, 2016.

When she came to Fortis Memorial, Gurgaon for treatment, the team did not expect the fairly fit, fair and smiling 27-year-old to be waging a daily battle with life. However, after examining her and running a battery of tests and scans, doctors at FMRI found that several of her internal organs were present in duplicate. She had two urinary bladders with two urethras, two uterus, two vaginas and two small and large intestines. One of the colons in her body was opening in between the vaginas. This opening also resulted in fecal incontinence, causing great physical discomfort and repeated infections.

The patient was diagnosed as having caudal duplication syndrome, which is prevalent at birth in less than 1 per 100,000 cases. With only about 30 cases reported worldwide so far, the disorder is associated with partial or complete duplication of the spine and some other caudal structures such as urogenital and gastrointestinal tracts.

A management student in Baghdad, the patient had adapted to a strict lifestyle in order to pursue her dreams. As she had no control on her second colon, she wore diapers all the time and ate sparingly. She had gone to several hospitals in Turkey and Germany for treatment, however due to risks of surgical complications, doctors had denied operating on her. In India, at Fortis, she underwent comprehensive radiological and endoscopic evaluation, following which a reconstructive surgery was conducted. The patient, thereafter, made a full recovery without any complications after all these years of misery.

For more information, please contact:

Fortis Healthcare Ltd.

Ajey Maharaj +91- 9871798573; 
Tanushree Roy Chowdhury: +91 9999425750; 

Avian Media

Rishu Singh, +91-9958891501; 
Preeti Sehrawat: +91- 9711170599; 

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