Five-year old Sunita (name changed) was born with a complex heart condition. Her heart had a large hole between the two lower chambers. In medical terms, such condition is known as Ventricular Septal Defect or VSD. This congenital condition had the right lower chamber of her heart giving rise to both her great arteries. While the Ventricular Septal Defect in itself is not very common, Sunita’s case was complicated as her Pulmonary Artery (the main artery extending to the lungs) was narrow and it arose in an abnormal position with respect to the Aorta (the main artery to the body). In medical terms, this condition is known as ‘double outlet right ventricle with malposed great arteries with a large inlet Ventricular Septal Defect and severe Pulmonary Stenosis’.
One of the two children of a Palghar-resident, a fisherman; Sunita grew up with the rare condition for five years, but the symptoms started to get more noticeable as she turned five. Her condition made her turn blue and she got tired easily with the slightest walking. Her lips and nails started turning purple. Even though her parents knew of the problem since she was 3 month old, they were unable to help her. While money for the treatment might have been an issue, her parents were also nervous and very scared of the surgery that was suggested for her.
After avoiding treatment for over five years, Sunita’s parents decided to explore options when the symptoms became even more visible and the child started feeling uneasy. Sunita experienced symptoms like shortness of breath, pallor, sweating while feeding etc. Upon the family doctor’s advice, her parents approached Fortis Hospital, Mulund. Sunita’s case was referred to Dr Vijay Agarwal, Head Paediatric Cardiac Surgery, Fortis Hospital, Mulund.
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Priya Bendre - 77385 70894
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